It is invisible illness week this week – see this link below. I am contributing for the reasons you will see, by completing the ’30 things list’.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: chronic migraine
2. I was diagnosed with it in the year: 2000 (approx)
3. But I had symptoms since: 1986
4. The biggest adjustment I’ve had to make is: the management of my expectations about what I can and can’t do. Also overcoming embarrassment about constantly being ill
5. Most people assume: I am fine, when I am in fact headachy to at least some extent at least 50% of the time
6. The hardest part about mornings are: waking up groggy/migrainey and trying to rally myself for work having taken strong medicine
7. My favorite medical TV show is: Private Practice
8. A gadget I couldn’t live without is: radio – I have it on constantly when in bed with a migraine – this can sometimes be many, many, hours/days
9. The hardest part about nights are: being too hot/too cold, getting too much sleep/not enough sleep. One of my triggers is an unproductive night’s sleep
10. Each day I take [10 -minimum] pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: should probably try harder to make the most of different options but cannot seem to make this work. I am, however, rigorous about avoiding triggers like caffeine, and am gluten-free.
12. If I had to choose between an invisible illness or visible I would choose: neither
13. Regarding working and career: I think I do a pretty good job considering…
14. People would be surprised to know: how bad my condition really is
15. The hardest thing to accept about my new reality has been: that I need to accept it and not fight it
16. Something I never thought I could do with my illness that I did was: gain two degrees while working and become very senior in my profession
17. The commercials about my illness: are superficial
18. Something I really miss doing since I was diagnosed is: drinking coffee, but I would much rather not have it in favour of staving off the caffeine-induced migraine
19. It was really hard to have to give up: chocolate. I also fear that I need to cut down on/give up other sugary products – this is work in progress
20. A new hobby I have taken up since my diagnosis is: hmmm – I have gone the opposite way and given up more hobbies than I have taken on
21. If I could have one day of feeling normal again I would: go on a lovely long walk along a beach
22. My illness has taught me: to take one day at a time
23. Want to know a secret? One thing people say that gets under my skin is: have you tried…?
24. But I love it when people: don’t try to suggest remedies
25. My favorite motto, scripture, quote that gets me through tough times is: this too will pass
26. When someone is diagnosed I’d like to tell them: you are not alone, but it’s ok to own your own illness
27. Something that has surprised me about living with an illness is: the different levels of treatment which people get from doctors – mine is excellent, thank goodness
28. The nicest thing someone did for me when I wasn’t feeling well was: lots of things all the time. I am blessed with kind, loving family and friends who support me and understand my needs.
29. I’m involved with Invisible Illness Week because: it is important to add support and reach out to others
30. The fact that you read this list makes me feel: honoured and pleased that I overcame my initial nerves about doing it. Thank you 🙂